Useful links
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Provides assistance to young adults and children who are experiencing hardship or deprivation; principally by the use of educational and social training. Activities include: holiday provision; education opportunities; countryside maintenance training; residential care; run sports activities. DLF Checked.
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Aims to promote awareness of Narcolepsy amongst the general public.
Provides authoritative information about the conditions. Supports the establishment of self-help groups. Encourages research into the causes and treatment of Narcolepsy. Co-operates with Narcolepsy Associations overseas. Membership available. DLF Checked.
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Self help organisation to promote the well being of children with an ostomy or incontinence problems, to assist parents and professionals with information on conditions. Free membership, newsletter, contact list, booklets and leaflets. DLF Checked.
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Aims to improve HIV prevention efforts and the quality of life of people with HIV/AIDS and to continue the AIDS awareness work of it's late Patron, Diana, Princess of Wales.
NAT publishes regular research and recommendations on HIV services and has projects on: Vaccine development, employment issues, drug access and World Aids Day and holds an annual Memorial Lecture in the name of the late Diana, Princess of Wales. Publishes an annual newsletter and a range of other publications. Contact organisation for further details. DLF Checked.
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Exist to educate people with Ankylosing Spondylitis, the public and professionals. Also funds research for early detection, prevention and cure; to promote better treatment facilities throughout the UK and to provide special assistance to those with the condition. DLF Checked.
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Registered charity of motorcyclists giving advice and practical information to riders with disabilities. Designs and funds adaptations to motorcycles and trikes to individual specifications; publishes a quarterly magazine which includes information on licensing assessments, insurance problems and social activities. Network of representatives throughout the UK. Membership available. Telephone line open 10am-1pm. DLF Checked.
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Aims to provide general information about inflammatory bowel diseases (IBD), to those living with IBD, their relatives, friends and health care professionals. Promotes research into the treatment, management and causes of these diseases and publishes results. NACC provides: annual grants to researchers; individual welfare funds; booklets; quarterly newsletters; publicity; fundraising; area, local and national group meetings; telephone information service run by Information Officers; In-contact support line to enable telephone contact with someone who has personal experience of Colitis and Crohns disease. Information line Mon-Fri, 10am-1pm. In-contact support line Mon-Fri, 6.30-9pm. Members are issued with a membership card. This also doubles as a card which requests access to the staff WCs of a number of national companies who have agreed to participate in the scheme and make their facilities available. DLF Checked.
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Offer support and advice for people with diverticular disease and their families. DLF Checked.
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To create a greater awareness of Premenstral Syndrome and to campaign for its recognition by all members of the medical profession. To offer support and advice to people with the condition and their families.
DLF Checked.
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Aims to promote the interest of those with exceptional learning needs and/or disabilities. Provide a forum for those actively involved with exceptional learning needs and/or disabilities. Contribute to the formulation and development of policy in the area.
DLF Checked.
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Central Government Scheme administered by Local Authorities and provides a national arrangement of parking concessions for people with severe walking difficulties who travel either as drivers or passengers.
Provides advice and support for blue badge holders and their families. Helps people with disabilities to integrate more effectively with the community at large and receive their rights be they monetary, physical assistance, access.
The NABBH are concerned with improving the use of the disabled parking permit and in obtaining and keeping greater mobility and access to all public and private places and events.
They openly condemn the misuse and fraudulent use of the permit and its privileges by individuals or groups of individuals.
DLF Checked.
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Provide free, impartial and confidential advice, through local bureaux, to anybody on any subject. DLF Checked.
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Aims to help people with post lingual deafness by bringing them together to meet others with similar issues. Provides a support service of information and advice. Promotes improvement in rehabilitation, education, training, retraining, employment and communication opportunities. Encourages the establishment of local support groups and campaigns to increase public awareness of the needs and problems of deafened people. Produces a number of information booklets. DLF Checked.
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Toy Libraries lend good quality carefully chosen toys to families with young children including those with special needs. They offer a befriending, supportive service to parents and carers. Leisure Libraries extend this concept to adults with special needs. There are over 1,000 toy libraries in the UK. DLF Checked.
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Aims to conquer asthma in partnership with people with asthma, and all who share their concern, by a combination of research, education and support. DLF Checked.
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Inter-professional forum for the exchange of information on back care and support of health professionals working to reduce occupational back pain in health care. Aims to promote the exchange and dissemination of information and ideas on back care; develops and promotes common standards of training in safer handling; promotes initiatives and acts as a forum for providing evaluation and audit of current practice in all matters associated with back care; lobbys employers to provide back care advisory services to reduce work related back problems and provides support and advice to members. Runs local groups and an annual conference. Produces a quarterly journal. DLF Checked.
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Provide direct help to improve the quality of life for older people on low income. This includes providing free holidays, for both able-bodied and disabled older people (in specially adapted holiday hotels). Also provided are TENS machines for the relief of pain and emergency alarms for security and peace of mind for older people who wish to remain in their own homes. DLF Checked.
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Provide an education advocacy project to help parents and schools integrate partially sighted and blind children. Run an Information Technology support section helping partially sighted and blind children to obtain PC equipment designed for their needs. Can provide funding for the IT equipment. Publish books on varies needs eg large print. Run activity weeks for visually impaired children. DLF Checked.
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A Voluntary organisation of patients and health care professionals formed to voice the concerns and opinions of people with cancer, about the services,care and treatment provided. DLF Checked.
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Works towards the day when all dogs can lead a happy life, free from the threat of unnecessary destruction. DLF Checked.
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Lobby central government on matters relating to the NHS and community care, with the view to raising standards in residential care homes, to the benefit of users. DLF Checked.
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Provide information and advice on personal assistance and offer a coordinated approach to developing new personal assistance support schemes. Activities include: providing information about personal assistance and personal assistance support schemes to individuals, groups and organisations; working with groups of disabled people and their local authorities to get personal assistance schemes started or developed; providing training to disabled people and local authority staff on various aspects of running a personal assistance scheme. DLF Checked.
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Aims to enable parents to have an experience of pregnancy, birth and early parenthood that enriches their lives and gives them confidence in being a parent.
Run antenatal classes and provide information on maternity issues, breastfeeding and postnatal support including specialists groups for caesareans and miscarriage. The NCT is also involved in research and campaigning.
Helpline open Mon-Fri, 9.30am-4.30pm. DLF Checked.
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The NCMA works for the well being of children and is accessible to all. They promote childminding as a quality & education service, and inform childminders, parents, central & local government and employers about best practice in childminding, other childcare & education provision, to meet the needs of children and those directly/indirectly involved in such care.
NCMA is a campaigning organation, seeking recognition of the vital role of childminding in society and for the resources necessary for a high quality childminding service. DLF Checked.
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The NCC was set up by the Government in 1975 to represent the interests of all UK consumers of goods and services of all kinds; both in the private and public sector. It is an independent body which campaigns, conducts research and supports other consumer organisations. It has particular reponsibility in representing disadvantaged consumers. It cannot advise consumers or act on their behalf on an individual basis. DLF Checked.
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Established in 1919 as the representative body for the voluntary sector. It is a membership based organisation, including some 850 national voluntary organisations. Through its wide reaching activities, NCVO is also in touch with thousands of other voluntary bodies and groups, and has formed close links with government departments, local authorities, the European Community, statutory and public bodies and the business sector. DLF Checked.
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Aims to give the best possible start to support all deaf children, young deaf people and their families in overcoming the challenges of childhood deafness. Activities include providing the best possible start, knowledge, support and opportunities to empower all deaf children to enjoy a happy, fulfilled and rewarding life. Publishes information on all aspects of childhood deafness. DLF Checked.
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The National Disability Council (NDC) or (NIDC) in Northern Ireland was created by Part VI of the Disability Discrimination Act, 1995. Council members are appointed by the Secretary of State. The primary function of the council is to advise the Secretary of State on the following matters; the elimination of discrimination against disabled persons; measures which are likely to reduce or eliminate such discrimination and matters related to the operation of the Act or provisions made under the Act (excluding employment issues). No advice service for members of the general public, but is interested in receiving feedback from organisations as to how the Act is working in practice. Do not provide a service to the general public. DLF Checked.
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Support organisation for their members.
Offer specialist advice and provide/co-ordinate all the elements required to solve housing problems faced by disabled people.
Provide details of your nearest group.
Activities include: helping to specify a service and drafting proposals; helping to set up office systems, procedures and registers; giving access to a pool of expertise; sharing knowledge of precedents and innovative solutions; giving mutual support; disseminating best practice, information and tips. Do not provide a service to the public, DLF Checked.
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Aims to improve the quality of life for people with eczema and their carers. The Society produces a range of information sheets including a list of cotton goods stockists which can be downloaded free of charge from the website. Helpline is open Mon-Fri, 8am-8pm. DLF Checked.
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Provide support and information for women with endometriosis. Run a national helpline for people with endometriosis, their partners and family. Funds research into endometriosis, and raises awareness of it among medical professionals and the public. DLF Checked.
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National charity which develops policies and practices to tackle the heating and insulation problems of low income households through improvements in energy efficiciency. DLF Checked.
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A National Express service committed to provide a consistently high standar service that is accessible to as many people as possible, included disabled passengers. DLF Checked.
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Fully accredited distance learning college which aims to provide the learning resources and opportunities to enable individuals to meet their vocational and personal goals. DLF Checked.
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Provides advice and information regarding setting up Shopmobility schemes. Publishes guidelines and a directory of schemes giving locations and open hours. Shopmobility itself is a scheme for manual and powered wheelchair and scooter loan in shopping centres in various towns in England, Scotland, Wales and Northern Ireland. Some schemes have children's buggies and wheeled walkers available. Most schemes are free, but some require a returnable deposit and/or hire charge. Some schemes also provide longer term vehicle loans. DLF Checked.
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To identify potential healers and to encourage and accelerate their development. Provide a national healer referral service to the public. Publicise spiritual healing through national exhibitions. Co-operate with doctors in a scientific programme for medical research into selected illnesses in NHS patients. DLF Checked.
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Self help organisation concerned with all matters relating to blind people. Campaigns for a more generous disability allowance, improved employment opportunities, a safer environment and integrated education.
Run a 'Get Street Wise Campaign' which is seeking to increase public awareness of the growing problem of pavement pollution, which concerns not only blind and partially people, but elderly, deaf and disabled people, as well as parents with prams or push chairs. Produce 'Viewpoint' - a quarterly magazine, available in Braille, large print and audio tape. 'Fedtalk' - a quarterly tape-only magazine free to all members. DLF Checked.
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Offer support for parents of children affected by Fetal Anti-Convulsant Syndrome.
Activities include: support by letter and telephone; information on the condition; linking with other families when requested; promoting research. DLF Checked.
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Co-ordinating body for local wheelchair user groups. Represents the views of NHS wheelchair users. Campaigns to improve quality of life, promoting independence of disabled people through the wheelchair service. DLF Checked.
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Works with all those involved in foster care, giving them a greater say in what is happening. Promotes partnership between social workers, the child, the child's family and the foster family. Provides information and advice, counselling and training. DLF Checked.
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Comprehensive information source on projects, work, issues, contacts relating to HIV Health promotion. For professionals only. DLF Checked.
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Helpline and website providing free independent advice and information on obtaining and paying for nursing home and residential care.
NHFA advice and information is free and available to all regardless of means and encompasses local authority charging and assessment procedures, DSS benefit, guidance on legal matters and financial advice. The aim of the NHFA is to enable older people meet the cost of their chosen care for life whilst also preserving their original capital, independence and dignity. DLF Checked.
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The Federation seeks to promote and represent housing associations and to promote good practice and provide information. They also have a directory of housing associations. DLF Checked.
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Aims to ensure that disabled people, and any other disadvantaged people who have difficulty in getting information have all the information they need when they need it.
Currently devising a guide to providing information to disabled people in ethnic minority communities.
DLF Checked.
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Provide direct services to children and adults with motor disorders; cerebral palsy; multiply sclerosis; parkinson's disease; children with dyspraxia and those who have suffered strokes and head injuries. DLF Checked.
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Scheme which provides disabled people with exclusive access to designated public WCs nationwide. The WCs are fitted with a special lock which can be opened with a key available from local authorities or from the Royal Association for Disability and Rehabilitation (RADAR), the national co-ordinator for the scheme. RADAR also publish a directory of WCs fitted with NKS locks. Keys 3 GBP; directory 2.50 GBP. DLF Checked.
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Run by kidney patients for their own benefit. Acts as an advice and information centre for patients, professionals and members of the public. Campaigns to increase treatment facilities, and encourages organ donation. DLF Checked.
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Raise money for research into the prevention and cure of kidney illnesses, training doctors and improving transplantation techniques. DLF Checked.
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Provides a library and information service for blind and partially sighted people. Houses Europe's largest collection of tactile books and provides a free postal library service to blind and partially sighted people worldwide. Collection includes 350,000 Braille and Moon volumes (including materials for learners) and 13,500 Braille music scores. Helps individuals choose their reading and answers reference and other enquiries, directly or through their website. DLF Checked.
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Independent body set up by Parliament to distribute funds to support charitable, benevolent and philanthropic organisations. The Board's main aim is to give grants to help meet the needs of those at greatest disadvantage in society and to improve the quality of life in the community. DLF Checked.
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Aims to have the best programme of medication and therapy available to people with ME and Chronic Fatigue Syndrome in the UK.
For individuals the ME centre can: discover if there is a source of help near to their home; support people with ME in getting a diagnosis.
Provide information for GP's and people with ME on the centre and their services; access to counselling services
Provide access to support workers
Provide access to self-help groups for young people and adults. DLF Checked.
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The National Network of Assessment Centres is a UK-wide network of specialist services that work together to facilitate access for people with disabilities to education, training, employment, and personal development. Assessment Centre services include assessment and support in the use of assistive technology and/or specialised learning strategies. DLF Checked.
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Aims to relieve sickness and promote and advance medical knowledge with particular reference to all aspects of osteoporosis and similar and related conditions. Undertake and publish research. DLF Checked.
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Deals with the protection and improvement of playing fields and is involved in education and training on aspects of play. Provides information and advice on holiday play schemes, and is currently awaiting funding to develop a similar and expanded service reaching out to children with disabilities. DLF Checked.
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Use exercise therapy to rebuild lives shattered by paralysis. The Centre treats people with a variety of conditions from spinal cord injury paraplegia and tetraplegia to MS, stroke, spina bifida and brain damage.
DLF Checked.
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Provide care for people with epilepsy through medical, residential and rehabilitation services. Provide information and support to people with epilepsy, their families, friends and professionals involved in their care, and raises awareness of epilepsy among the general public. DLF Checked.
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Helps 'The relief and welfare of all people with a mental handicap in all kinds of residential care establishments, including the family home'. Open Mon-Fri, 9.00amn-4.30.p.m.
DLF Checked.
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Offer the opportunity for parents to meet and share their experiences. Provide information and details of regional support groups.
Quarterly magazine and booklets available. DLF Checked.
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The NSPCC has over 120 Child Protection Teams throughout England, Wales and Northern Ireland, who work with children and families to help them overcome the effects of emotional, physical, sexual abuse and neglect, and to prevent further abuse from happening. The NSPCC conducts special investigations into abuse, assessment and therapy work, drop in centres for families and preventive programmes and local training and consultancy for those working with abused children.
DLF Checked.
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Committed to the protection of historic buildings, coast and countryside. A free annual information booklet entitled 'Information for Visitors with Disabilities' is published each March giving details of access for enjoyable and comfortable days out. This booklet is available in standard print, large print and on tape. A list of battery-powered mobility vehicles is also available. Also published is a booklet giving details of items for visually impaired visitors to touch. DLF Checked.
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Organisation run by wheelchair users which provide help, information, equipment and support for wheelchair users. Advice provided about the NHS wheelchair provision and the EPIOC and Voucher Scheme. Current projects include working with EmPower and The National Forum of Wheelchair Users to improve consistency of wheelchair provision throughout the UK. DLF Checked.
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Information on over 120 woodland burial grounds, where a tree is planted instead of having a headstone. Cardboard and regular coffins can be mail ordered, inexpensive funerals arranged, familily organised funerals facilitated and more options available.
All options are covered in their book entitled the 'New natural Death Handbook'. DLF Checked.
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The Navigator Group Limited are Quality Assurance specialist who provide Access Audits to meet the requirements of the DDA. RADAR has entered into an association with the Navigator Group who are developing a national access audit service and can bring the necessary technical, commercial and marketing resources. DLF Checked.
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Network 81 is the national network of parents of children with special educational needs. Aims to work towards properly resourced inclusive education by: educating parents about matters relating to their children's education; linking up and supporting groups and individual parents of children with special educational needs; raising awareness and publicising good practice in inclusion; encouraging parents to take their rightful place in the education policy making process; promoting parent-professional partnership. Activities include a Help-line operating from 10am to 2pm, Monday to Friday, offering advice and information on special educational needs, assessment, the statementing process, choosing a school, communication with schools and local authorities, rights of parents and of children. Links parents with local support groups where possible and appropriate. DLF Checked.
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Provide funds for research into methods of treatment for childhood cancer neuroblastoma with an eventual cure in mind. DLF Checked.
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Act as a mutual support group to those affected by neurofibromatosis; provide advice, counselling and information; to liase with the medical profession; promote awareness and understanding of the disease and to fund research. To establish a network of Neurofibromatosis Coordinators. DLF Checked.
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Aims to secure improved care and public support for people with a neurological condition. Identifies issues of mutual concern and pursues agreed courses of action. Promoten the collection and exchange of information on neurological conditions. Acts as a forum for relevant target audience. Seeks to inform and influence policy makers about the needs and circumstances of people with neurological condition. DLF Checked.
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International organisation providing support to those affected by the neurological disorder - Peripheral Neuropathy.
The trust offers a 'listening ear' for people who wish to talk to fellow sufferers of this condition through an advice line which is open Wed-Thu, 10am-4pm.There is also a local contact network, which is a group of volunteers that members of the Trust can ring for mutual support. The Trust has published a comprehensive booklet entitled 'Peripheral Neuropathy-Under the Spotlight' and a journal entitled 'Relay', which is distributed three times per year.
DLF Checked.
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A US organisation that provides information for new fathers. If you are a first-time dad, this website is for you. It is filled with practical and sound advice on starting a new family from an elite core of experts. DLF Checked.
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New Jumbulance Travel Trust exists to make it possible for severely disabled and sick people to travel on holidays and day outings which for most would be well nigh impossible by any other means. DLF Checked.
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National health information service available 24 hours a day Provide information on charter standards, local NHS services, how to complain, inproving health, common diseases and conditions, self help groups and hospital waiting times.
Callers can also listen to a series of tapes on conditions and treatments. DLF Checked.
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Aims to improve the conditions of life for all asylum seekers and refugees. Provides free and confidential assistance advice/information and support to asylum seekers and refugees. DLF Checked.
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A voluntary self-help group providing help and support to people with this complex eye condition through newsletters and meetings. It supports research into possible treatments, promotes awareness and raises funds. 'INSIGHT' helpline: state that you are calling about Nystagmus DLF Checked.
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