Useful links
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Helps children and young people with speech and language disorders to communicate and develop functional language through the use of Paget Gorman Signed Speech (PGSS). PGSS is a manual signing system which reflects normal patterns of English with reference to the main grammatical features of the language. It is used in approximately 100 special schools and units in the UK. The Society runs courses of training, awards qualifications and publishes a range of supporting materials. DLF Checked.
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Involved with projects examining the neurophisiological response to pain. DLF Checked.
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Representative body for all professionals involved in the management and understanding of pain in the UK and Ireland. The organisation does not give specific medical advice but will send out literature and details of pain clinics to which the public may be referred to by a GP. DLF Checked.
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Website that provides information, advice and support for those with pain. Features include a confidential contact club; discussion forum, regular lively newsletters and much information on self-help techniques for reducing and managing chronic pain. DLF Checked.
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Courses for people who want to paint and draw but either can't face going out in public at an art class or are unable to get out due to mobility issues. DLF Checked.
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The official Olympics internet site with a Paralympics section DLF Checked.
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Provide support for parents under stress and facilitate and maximise a family's capacity to care for its child, thereby making a contribution to the prevention of child abuse and neglect.
Activities include accredited parenting courses run nationwide, development of innovative projects which provide support to families, information and publications on a variety of family issues and in -house training and consultancy for professionals working with families. DLF Checked.
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Uniquely, by working with parents and organisations alike, PARENTS AT WORK help children, working parents and their employers find a better balance between responsibilities at home and work. By operating in the real world of pragmatic advice and pratical solutions, we are making our vision a reality. Our web site introduces our work but also offers sources of information and helpful advice. Factsheets on childcare and rights at work can be downloaded from web site or leave your name and address on 020 7490 2414 (24 hour answer phone). Waving not drowning project for parents of children with disabilities offers free newsletter, publications and helpline. DLF Checked.
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Work closely with disabled adults, to bring their understanding and experience to parents, so that parents can become real allies to their disabled children. Provide helpline, training, groups in school, representing parents, links with the inclusion movement and a Centre for Inclusion. The Inclusion helpline is staffed by parents who have been there and know the score. DLF Checked.
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Aim to help patients and their relatives with problems arising from Parkinson's Disease; to collect and disseminate information on the disease; to encourage and provide funds for research into the disease.
Telephone service open Mon-Fri 9.30am-5.30pm excluding bank holidays offering listening, advice, information, signposting and support on Parkinson's disease for people with Parkinson's, their relatives, carers and professionals.
Membership available to all people with or interested in Parkinson's Disease. DLF Checked.
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Advisory service, and collective voice, for patients, health professionals, and the drug industry. Provide information on patients' rights, complaints procedures and access to health services. Helpline open Mon -Thurs 10 - 4pm. DLF Checked.
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The PHSP work to produce access guide books and our most recent ones are 'Access in London', 'Access in Paris' and 'Access to football grounds'. A lot of work goes into these books. DLF Checked.
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Aims to improve the service people receive, whether they are already a pensioner or are planning for their retirement, no matter how far off it might be. Activities include: working out the amount of State Retirement Pension and Minimum Income Guarantee that people are entitled to. Paying entitlements and answering questions over the phone and by post (or by email where possible). Telling people how they can access other pension-related entitlements and services. The Pensions Service is currently setting up local centres throughout the country. Publications include a number of Pensions related factsheets and a Customer Charter. DLF Checked.
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Aims to help members of the public who have problems with company pension schemes or personal and stakeholder pension plans. Can also answer general queries on state pensions.
Activities include an explanation of benefits to people who find difficult to understand and obtain information from pension schemes or plan if people are not able to obtain what they need.
Try to make sure that people receive the benefits they are entitled to.
Local Groups: Network of volunteer adviser throughout the country.
Publish a range of information leaflets relating to pensions. DLF Checked.
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Provides one-off grants to older people and people with disabilities or mental health issues. Financial assistance can be provided for electrical and gas appliances, household goods, telephone installation, car adaptations. All applications must be made by a social worker employed by the local or health authority. DLF Checked.
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Aims to help families of children and adults suffering from Perthes disease (a form of Osteochondritis), and associated conditions including Multiple Epiphyseal Dysplasia, Kholer's Disease, Osgood-Schlatter's Disease, Larsen-Johansson Syndrome, Panner's Disease, Schuermann's Disease and Sever's Disease.
Helps and advises families of children suffering from Perthes' disease and associated conditions. Volunteers are 'at the end of the telephone line' for any worried or distressed parents, and will visit them if possible or put them in touch with a family living locally. Advice on practical and financial help available for a child suffering from Perthes' disease, or MED (Multiple Epiphyseal Dysplasia). Have supported families and supplied equipment for children with CDH (Congenital Dislocation of the Hip). Family membership available. DLF Checked.
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Aims to integrate people with and without physical disabilities through 300 clubs in England. Activities incude social meetings, sports, outings and holidays. Some groups are specifically for younger people up to the age of 25.
DLF Checked.
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The Philadelphia Association was founded in 1965 and is a member of the UK Council for Psychotherapy (UKCP). It is a registered charity. The Philadelphia Association is a charity concerned with the understanding and relief of mental suffering. The association runs a small number of therapeutic community households, also psychotherapy training courses and public lectures and conferences. An Introductory Course is open to those interested in the general field of psychotherapy.
DLF Checked.
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Independent UK focal point for telecommunications and the needs of disabled and elderly people.
The group acts as a catalyst in this area by organising conferences and seminars on telecommunications and disability.
It also acts as the UK reference group to the European project COST 219bis on telecommunications: Access by disabled and Elderly People. DLF Checked.
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Picture This Partnership makes information easier to understand for people with learning disabilities. They do this by using plain English and supporting the text with pictures.They produce a free monthly newsletter which contains up-to-date disability related news stories, which can be downloaded from their website. Again, this is in plain English and supported by pictures. DLF Checked.
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Aim to assist around 2,000 children with disabilities mainly from the British Isles, in making a pilgrimage to Lourdes at Easter and to ensure adequate provision of voluntary medical and nursing helpers to accompany them. Also to provide accommodation for other people with disabilities at a specially adapted house near Lourdes between Easter and November in two groups a week, each of 40 to 50 pilgrims. DLF Checked.
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Pinkfeet.co.uk is an online directory for the feet, lower limbs, health, fitness, sport and mobility. It is run and managed by a podiatrist to promote foot healthcare awareness with access to good quality products and services, health education and information. DLF Checked.
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Campaign for the use of plain English in public information. Website contains various guides to help you produce well written and well designed documents, which can be downloaded free of charge. Commercial services include training and editing. Provide services to government departments, local councils, banks, building societies, solicitors, schools and commercial companies. Open Mon-Fri, 8am-5.30pm. DLF Checked.
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Global International health, medical and disability resources database. Categorised medical condition search for people with disability or health impairments.
DLF Checked.
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Theatre which is open Tuesdays to Saturdays, all year except September. The main auditorium is wheelchair accessible via a lift. The theatre is equipped for hearing aid users via an induction loop system. Signed performances are offered on request. Scripts are available on tape on request. The theatre provides organised workshops on drama, crafts and puppetry. In-school workshops can be arranged for children who cannot travel. Courses are run for teachers, therapists and anyone working with people with a disability. DLF Checked.
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Peer support for women living with HIV by women living with HIV. Aims to empower women living with HIV to make informed choices and to ensure that the voice of HIV positive women is heard. DLF Checked.
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Organisation that addresses the needs of people with PWS, their parents, carers, professionals from health, education and social services who work with them. DLF Checked.
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Aim to help people who have been abused by Health and Social Care professionals. Provide information, support and advocacy.
DLF Checked.
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Promote awareness and early diagnosis of primary immunodeficiencies. Provide information and support and encourage original research. DLF Checked.
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Helps people of 30 years of age and younger with a disability to start up their own business and offers advice and grants of up to 1,500 and loans of up to 5,000 with reasonable terms of repayment. Each new business assisted is given a volunteer adviser to offer general business advice. DLF Checked.
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Aims to make it easier for carers to cope by providing support, information and practical help. Provide training and support for Carers Centres as well as raising funds for development work. It also has a range of grant schemes for carers. DLF Checked.
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National service which provides independent and impartial information on continence products and displays equipment. The organisation produces information packages and runs a helpline service open Mon-Fri,10am-3pm. DLF Checked.
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Aims to improve the care of people whose lives are affected by prostate cancer. Offer a telephone helpline, UK support network and range of literature. Carries out research to improve diagnosis and treatment.
Helpline open Mon-Fri 10am-4pm. DLF Checked.
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A national association of regional and local self help and support groups. It is managed by, and for, men with prostate cancer, their families and those with an interest in prostate cancer. Provides free and confidential help, support and information. DLF Checked.
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Provide information about prostate cancer, prostatitis, and BPH. The Association have information sheets, reports and Newsletters. We
research new and old treatments so that members are fully aware and are able to make the most positive decisions about their symptoms.
Please send two first class stamps for initial information. DLF Checked.
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Aims to raise awareness and help people with psoriatic arthritis and it's associated skin disorder, psoriasis. There are regular newsletters and journals, information sheets, access to local contacts and an annual conference. DLF Checked.
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The Psychotherapy Centre is an established Training, Therapy, Publishing, Referral, and Research centre, with psychotherapists at the centre trained to help people to resolve their emotional problems, relationship difficulties, psycho-sexual problems, neurotic patterns of behaviour and psychogenic conditions. They do not use drugs, interpretation, or theory. Their methods are based on decades of experience and research into long term effects of different methods upon the whole person. DLF Checked.
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