Useful links
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Support group for people with Xeroderma Pigmentosum - a rare genetic disorder which causes extreme sensitivity to the sun's ultraviolet rays. And those with other light sensitive or UV sensitive conditions.
We produce a Newsletter 3 times a year. Hold two meetings a year including a weekend night time camp called the Owl patrol. Offer grants for equipment for UV protective equipment. Opening Hours: 9.00am to 9.00pm. DLF Checked.
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