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  • Xeroderma Pigmentosum Support Group
    Support group for people with Xeroderma Pigmentosum - a rare genetic disorder which causes extreme sensitivity to the sun's ultraviolet rays. And those with other light sensitive or UV sensitive conditions. We produce a Newsletter 3 times a year. Hold two meetings a year including a weekend night time camp called the Owl patrol. Offer grants for equipment for UV protective equipment. Opening Hours: 9.00am to 9.00pm.


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Testimonials

  • "In this information age the Disabled Living Foundation is even more important than when it first started. It is too easy to get lost in the mass of material about equipment that might be of help and few people have the time to sort it all out - especially when you are newly disabled. I have always valued the systematic collection and organisation of equipment information that the DLF provides and just wish they had the funding to make their information freely available for the public benefit" - Baroness Wilkins